Day 843 – Grayson’s Journey

Dear family and friends

Grayson woke up bright eyed today. The difference between yesterday and today was phenomenal. When he was having breakfast he was alert and looking at us and around the room. He responded when asked questions, although his responses are not always understandable. He was alert until the time we put him to bed tonight.

Today my cold was remarkably better. Yesterday I was afraid that I may give it to either Regina or Grayson. Today Grayson was not only bright-eyed but runny-nosed. He was really congested by bedtime. Regina had to dig through her notes to determine what she could give him that wouldn't cause a risk with his cardiac condition or medications. We are fortunate that Grayson doesn't get sick very often

The "big outing" for Grayson today was a trip to visit his neurologist at USC for his semi-annual checkup. There is not much to report out of that visit. Regina spoke with the neurologist about the potential use of a drug that might allow Grayson to "focus" more. We will visit that with the rest of the medical team, especially his cardiologist, before we move in that direction.

All in all Grayson was very fun to be around and had a good day, in spite of his cold. He really is a happy child at almost 27.

Pax!

Brant

Day 842 – Grayson’s Journey

Dear family and friends

Another full day at the Reed Haus! Regina was off to the office early and I worked from home as I am still fighting the bad cold I managed to catch last week. I "think" that I am through the worst, but I also said that yesterday. I'm still praying that I don't manage to give it to either Regina or Grayson.

Grayson was a bit slow today. I wonder what happened overnight – he was alert yesterday and not so today. The roller coaster ride continues but it is not as much a surprise as it used to be.

Pax!

Brant

Day 841 – Grayson’s Journey

Dear family and friends

Grayson has been particularly alert this evening. We had an easy dinner of pork chops and sweet peas this evening and Grayson as always ate everything on his plate. After dinner he went upstairs to watch some TV. As always when he gets particularly active and alert he had trouble sitting to watch even his most favorite show – AFV. Later when he went to bed he just couldn't stay down.

We are obviously in one of his alert cycles!

Pax!

Brant

Day 840 – Grayson’s Journey

Dear family and friends,

This Sunday morning, I was up and out early to serve at both of our worship services. This allowed Brant to get Grayson up and ready for the day. When he went into Grayson's room to wake him, Grayson was giggling and laughing – in his sleep.

What a great way to start the day – for both of them.

This evening we sat after dinner, talking with Austin and Xixi when Grayson stood up from the table. I asked where he was going and he pointed up and answered "to bed".

I'd say it was a pretty good day, from beginning to end.

God's peace be upon each of you.

Regina

Day 839 – Grayson’s Journey

Dear family and friends

Today was a relaxed day at the Reed Haus! Sleep in Saturday followed by an easy start on the day. Some errands were accomplished and I spent several hours working a vexing problem with a pile of home electronics trying to get everything to play together nicely. One more replacement part may just get me there!

Grayson joined me on my errands today and he was quite alert and pleasant as always. I got enough pieces cobbled together to get our entertainment system partially working so we had the opportunity to watch a movie tonight before heading off to bed!

Pax!

Brant

Day 838 – Grayson’s Journey

Dear family and friends

Grayson was charming this evening. After I relieved Anishka from watching Grayson, we drove over to pick up Regina from work. We enjoyed a pleasant meal together before heading home to start to rest up from the week. Have a great weekend!

Pax!

B rant

Day 837 – Grayson’s Journey

Dear family and friends

You know that it has been a long week when both Regina and I had to wake up to put Grayson to bed! He is sound asleep now and so are we – almost. Good night all!

Pax!

Brant