Dear family and friends,
Grayson was back to slow motion again today and clearly not as alert as the last several days. He generally had trouble initiating and responding to directions. His speech was quite muted and he was back to scratching his head off and on all day. He was edgy and there seemed to be neurological "noise" going on in him.
It really makes us wonder what goes on in his body and mind to have him simply wake up either "on" or "off" each day.
We continue to work on building muscle and brain pathways and we continue to look for the moments of opportunity that will meet his needs that particular day.
What a ride life is.
P.S. Happy Birthday and love to my husband and friend.
Regina
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