Day 843 – Grayson’s Journey

Dear family and friends

Grayson woke up bright eyed today. The difference between yesterday and today was phenomenal. When he was having breakfast he was alert and looking at us and around the room. He responded when asked questions, although his responses are not always understandable. He was alert until the time we put him to bed tonight.

Today my cold was remarkably better. Yesterday I was afraid that I may give it to either Regina or Grayson. Today Grayson was not only bright-eyed but runny-nosed. He was really congested by bedtime. Regina had to dig through her notes to determine what she could give him that wouldn't cause a risk with his cardiac condition or medications. We are fortunate that Grayson doesn't get sick very often

The "big outing" for Grayson today was a trip to visit his neurologist at USC for his semi-annual checkup. There is not much to report out of that visit. Regina spoke with the neurologist about the potential use of a drug that might allow Grayson to "focus" more. We will visit that with the rest of the medical team, especially his cardiologist, before we move in that direction.

All in all Grayson was very fun to be around and had a good day, in spite of his cold. He really is a happy child at almost 27.

Pax!

Brant