Day 50 – Grayson’s Condition

Dear family and friends

Today was another low energy day.

Grayson was hard to rouse this morning, and we spoke with the physicians again. Another med was dropped from his list. It is a fine line, but we may cross back over to sleepless nights again! Later in the afternoon, Grayson appeared confused for a bit, sort of bouncing every minute or so from sitting in the chair, laying down and getting up again to head somewhere. Later he walked for a bit, then rode around in a chair until he fell asleep around 8:30 PM. Stay tuned tomorrow to see how he did overnight.

Today Grayson was able to demonstrate pointing to several objects when asked where they were. He was able to see words on a paper (ladder, belt, ear hammer, etc.) and was then able to point to a picture of that object. (Yes he can read words!) The big thing today when he was able to write his name in both cursive and print – not very neatly, but his penmanship wasn't that good before!

Grayson's tracheostomy was capped today to see if he could tolerate the change. He didn't even flinch. With luck, we should be able to have this annoying item removed this week. Once we can prove that he doesn't aspirate it, he will finally be able to take solid food and water.

It has now been seven weeks since the incident. Every day this past two weeks we have seen a little awakening. As Regina so aptly put, God is giving us Grayson back a little bit at a time. He is a kind and loving God. How much of Grayson can we dare to hope to get back? We'll just have to let the Great Physician write that chapter as he sees that we are ready for it.

Pax!

Brant and Regina