21 January 2010

Day 66 – Grayson’s Condition

Dear family and friends

Today was a good day.

Regina arrived at the hospital tonight in time to give Grayson his dinner. As I mentioned yesterday, as long as Grayson eats half of his pureed food tray, he will not have any more tube feeding. That moves us a step closer to getting rid of the feeding tube – the last vestige of ICU, except for the living and breathing part! Grayson needs to be fed in order to be sure that he doesn't aspirate his food. Given the shakiness of his hands, a spoon would be a difficult thing right now anyway. He is supposed to say something between bites so that we know that the food is out of his mouth and not stuck in his throat. When asked if he wanted another bite of something today, he responded, "Yes, please." Score extra upbringing points for Mom!

As I watched him climb into bed and pull the covers up to snuggle in for the night, I was struck by the change over the past four weeks since we arrived here at this facility. When we arrived, he was unable to sleep through the night, he thrashed about, and a blanket was the last thing he would have on top of him. Now, he sleeps calmly, and the only thing that the sitter needs to worry about is helping him if he should jump up to go to the restroom. Things are sure different than a month ago!

Now we are just days away from another move – the next steps on our journey. This will be a 3 to 6 month chapter, as he learns how to start integrating back in to society. We'll pass on more information as we get closer to the move. God continues to lead us in a wonderful direction!

Pax!

Brant

1 comment:

  1. "Integrating into society"? He smiles. He's polite. Everyone who meets him adores him. How many people do we currently know, who are allegedly "integrated into society," can't have that said about them?

    Motor skills can be taught; technology can solve a lot of mechanical problems (and remember, even a cane is "technology"). Kindness comes from somewhere far deeper.

    Grayson's societal skills are undimmed. The world needs people like him, and it will embrace him when he's ready to rejoin it.

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