17 August 2010

Day 275 – Grayson’s Journey

Dear family and friends

Today Grayson was just a bit off his game. He was agitated from the time he got up, and had some minor incidents of behavior throughout the day. He shook a fist at someone on the morning shift at the residence, he was head down at lunchtime, and he took a swing at someone in the afternoon shift at the residence. In all cases he was redirected and got out of whatever particular funk he was in at the time of the incidents, but it is still a setback.

These pesky incidents get in the way of some of the good things that Grayson is doing – he made dinner, went to the park and watched kids play, took out the trash – the usual stuff, but good stuff. When I talked to him tonight, he was reading his xkcd comic book and chuckling. I told him that we had found the Calvin and Hobbes comic book from my parents house, an old favorite of his from his early years. He was thrilled!

Let's pray for a better day tomorrow!

Pax!

Brant

2 comments:

  1. Debi Gutierrez18 August, 2010 09:05

    Dear Regina and Bryant,
    We are praying every day for your family and Grayson and will continue to give praise for his progress and celebrate with you on the good days and will pray for better days when things get a little rough.
    Love,
    Debi, Ria's mommy

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  2. I ask my own neurologist questions about "setbacks" all the time. We (I certainly) seek meaning from every event, and how that meaning pertains to the future.

    The answer is always the same. The event doesn't "mean" anything, because with neurological issues, you just don't know the future. You can't know. All it "means" is... that's what's happening today. Today.

    So, it may be disappointing, but it may not be a "setback," because it may very well portend... absolutely nothing.

    "Not knowing anything" never feels good, but by the same token, knowing that something doesn't have to "mean" that things have gotten "worse"... well, in the neurological biz, you take what you can get.

    Hang in there!
    R.

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