Day 133 – Grayson’s Journey

Our dear family and friends,

Little things mean a lot.

This weekend Grayson's eyes lit up when we told him we had a gift for him. It was a black "Prep Tech" hat sent by Dr. Parker and designed by his friend Andy Chen. His exact response was, "Cool" and he proudly wore it all day, occasionally taking it off and looking at it. Not only does it protect him from sun burning his head in the intense Bakersfield sun but it reminds him that he is remembered and loved. He sends his thanks to both of his dear friends.

One of the wonderful and varied activities available to the residents of the center where Grayson is living is a ping pong table. What an inspiration. From my observation, it is terrific at working on hand-eye coordination and reaction time. An additional benefit is all bending, chasing, and retrieving of a bouncing runaway ball – an awesome balance exercise. I was encouraged by how quickly Grayson responded and that he determinedly chased the ball as it rolled under tables and chairs.

Earlier this evening he went for a walk with a staff person and came upon a basket ball activity with some other residents. He joined in and dribbled and passed the ball around for a while.

He was fairly verbal today and had no behavior issues other than refusing to do his homework. While we know how important homework is, I believe that refusing can also be a good sign of exercising choice and maintaining some control. I choose to think this way unless it becomes a pattern.

When we called him tonight he gave very short answers and then said, "Love you, talk to you later". The quick dismissal prompted Brant to ask if the television was on. Indeed it was and he was watching one of his favorite shows, "House". We didn't even try to compete with that.

I thank God for all the little things in Grayson's day today: a hat, ping pong, basketball, choices, and favorite TV shows. I also am thankful for all of the big things: continued insurance coverage, variety of therapies at a competent facility, friends and family who continue to hold us up with their love and care, Grayson's friends who don't forget about him, and a faith that allows us to take each day as the gift it is.

Grace and peace,

Regina