06 May 2011

Day 537 – Grayson’s Journey


Dear family and friends,

Yesterday Brant spoke of the end of one chapter in our journey. I could feel his uneasiness about the uncertainty of the next steps.

I had mixed feelings about the changes but I was also encouraged because we had located a loving caregiver that Grayson seemed to respond well to. We invested several weeks paying her to attend Grayson's therapy sessions so she could observe techniques and become more familiar with the rhythms of his on and off days. Brant and I both really liked her and were grateful that we could have a loving individual care for Grayson at least a couple of days a week. This would allow me to return to my office during normal business hours on those days – with fewer late evenings and weekends. We would also save a fortune in mileage driving to the clinic. I was looking forward in many ways to the new rhythm of our lives.

Late this afternoon, we got a message that she changed her mind and is no longer available to us. No warning, no explanation. Needless to say, we are extremely disappointed. Yes, we can start interviewing again. Yes, there are other caring individuals out there. We will, however, not have the opportunity for a new individual to attend therapy sessions with Grayson and learn from observing professionals interact with him. 

Some things are hard to understand. They can come out of the blue and hit you in the stomach. That's how we feel this evening.

We will shake off our disappointment, our confusion, and yes, our anger over a wasted investment. There is still a plan for our lives. It will unfold in due time as it always does.

"I lift up my eyes to the hills – where does my help come from? My help comes from the Lord the Maker of heaven and earth." (Psalm 121:1-2)

God's grace and peace to each of you.

Regina

7 comments:

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  2. Pam had a typo in her previous post... I'm so sorry this happened and pray that you will soon find a new and wonderful caregiver.

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  3. I'm sorry for all the stress and discomfort this is causing you! I have had (far too) many similar experiences, when everything is under control and all hunky-dory and then SLAM! right into a wall. And the future is not only obscured, it's blank; all my plans are for naught, and I have no idea at all what's about to happen.

    And yet each and every time that has happened, that "bad luck," that "calamity," has not only paved the way, but catalyzed, something that was even more wonderful and that the years that follow show was precisely the very thing that needed to happen.

    Tezin Gyatso, the 14th Dalai Lama, said that "not getting what you want is sometimes a wonderful stroke of luck." The book of Romans tells us that "all things work together for good for those who love God." When such disparate sources, separated by culture and centuries, are offering us the same messages of comfort... best we should listen to them.

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  4. So hard to understand, yet your remarks show how you will be able to carry on. It seems an opportunity wasted. If only we had eyes to see what good thing is around the next bend. I guess this is where the eyes of faith must take over. We'll be waiting with you, in prayer, for these great needs to be met.

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  5. Robert said it so eloquently. When one door is shut, another one opens. Even though you are disappointed now (and I am feeling your sorrow), there is much better that God has in store for you. Thanks for letting us share the journey with your family.

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  6. We are praying for you all as you continue the search for the ways you will move forward. Blessings and love, Steve and May

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  7. Hi Brant and Regina:

    Nuts... but, as you say, we turn the page and look to the next opportunity. Things can be so messy, even after all of the care and agreements and payments and planning. We will be keeping you in our prayers for sure, and look to the Lord for the RIGHT person to work with Grayson.

    In Him,

    Doug

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