31 December 2010

Day 411 – Grayson’s Journey

Dear family and friends

Grayson and the entire group at the clinic went bowling after lunch today. The group got in an entire game and a pizza! All of the therapists were there also. It is great therapy – out in the community, playing a game together, taking turns, the physical challenge of rolling a heavy ball down a lane, comprehending instructions, keeping score, even putting on bowling shoes and tying the laces – it is all the therapy of living. Grayson had a blast!

It is the last day of 2010. It has been a wonderful year. Even if our lives have been changed forever, it is wonderful to have lived and seen the changes and improvements in Grayson's life. While he will never again be the young man we knew, he is a wonderful and loving young man and we accept the special opportunity we have been given. We are blessed and challenged as we share his journey with him.

Pax!

Brant

30 December 2010

Day 410 – Grayson’s Journey


Dear family and friends

Today Grayson and I had lunch together before going to the clinic. It was a nice change of pace for both of us! At the clinic today he focused on cognitive (speech) and physical therapy.

After we arrived home tonight, I unloaded the dishwasher. I put the basket of flatware on the counter and Grayson immediately began to put it away, sorting forks from knives and putting them all in their place. He put about half of them away before losing interest, but I was pleased with the help and pleased that he did so without being asked.

Little things in life are good!

Pax!

Brant

29 December 2010

Day 409 – Grayson’s Journey


Dear family and friends

Today was another clinic day for Grayson. Today he worked on auditory comprehension, attention span exercises, balance drills and stationary bicycle work.

After we returned home, Austin and Xixi came over to use the exercise room. After their workout they joined us for dinner. Later a group of Lauren's friends came by to watch a movie. After much negotiation, they watched The Matrix. It was great to have a house full with the chaos of young(er) folks over. The house is alive again!

Pax!

Brant

28 December 2010

Day 408 – Grayson’s Journey


Dear family and friends

After a four-day Christmas break, Grayson was back at the clinic today.

Activities at the clinic are great for Grayson as they really work on the areas where he needs focused attention. For example, today he spent time working on auditory comprehension and computer use with some basic typing and navigation. In physical therapy he pushed a 220 lb cart up and down the hallway 4 times and restocked 12 1-gallon water bottles on shelves. (FYI – One gallon of water weighs roughly 8 lbs.) Grayson was pooped when I picked him up tonight!

When we arrived home we gathered and took out the trash. After dinner we opened a gift that Grayson didn't get to on Christmas – the 25th anniversary edition of the Back to the Future trilogy (yes, now I really do feel old!) We watched the first one tonight. I feel odd saying that I never saw the entire movie before!

Hard work and fun – this is what makes a great day!

Pax!

Brant

27 December 2010

Day 407 – Grayson’s Journey

Dear family and friends

Grayson and I had a busy day today. We met with a roofer, did some work on a door lock, had new tires put on the van and dropped the van off for service at the dealer. Along the way, Grayson and I ran into several people that knew him from before his incident. One is a flooring contractor who worked with Grayson while he was helping us get a unit ready to rent. The other was a couple that we worked closely with in Cub Scouting, and who knew Grayson before he bridged to Boy Scouts. We took Regina to lunch and we encountered them at the restaurant. All were glad to see him out and about and all were touched with his current, very different state.

Grayson was a champ today as we ran here and there to get things done. He is still great company but not much of a conversationalist. It takes some effort to keep him engaged but that is what we do now!

Pax!

Brant

26 December 2010

Day 406 – Grayson’s Journey


Dear family and friends

Regina got Grayson up this morning and brought him down for breakfast.

When he arrived at the bottom of the stairs, one of us said, "It's December the 26th", and he responded, "The day after Christmas".  This was astounding as he rarely answers in more than a word unless it is a well worn phrase as in the next line of a song.  It was especially surprising since he is rarely verbal in the morning until he gets some energy going.

This was a good start to a good day. We ended the day watching one of our Christmas gifts – Harry Potter and the Half Blood Prince. Life is good!

Pax!

Brant

25 December 2010

Day 405 – Grayson’s Journey


Dear family and friends

"Happy Christmas to all, and to all a good-night."

Pax!

Brant

24 December 2010

Day 404 – Grayson’s Journey


Dear family and friends

Christmas Eve! The day before the Feast of the Nativity of our Lord is always a special time.

Our opening hymn for tonight's 6:30 service was Once in Royal David's City. Since 1919, the Christmas Eve program at King's College Chapel in Cambridge opens with that hymn as the processional. The first verse is sung by a boy soprano a capella. When Grayson was in 5th grade, he was chosen to sing that verse to open the Christmas program at his school. Here is an encore of that performance from 1996. (I know that I shared it last year, but it is just too precious not to rerun!)

We are working late on our individual labors of love – preparing gifts and food for our extended family tomorrow. Christmas music is blaring (currently In the Christmas Mood, a fun Glenn Miller band version of Christmas music), the fireplace is roaring, and more and more presents are making their way under the tree.
May the promise of Christmas fill you all with joy and love that will carry you throughout the year.

Merry Christmas!

Brant

23 December 2010

Day 403 – Grayson’s Journey


Dear family and friends

Today was the last clinic day before Christmas and the beginning of a four day weekend for Grayson! Regina and the rest of the family continue to scurry around getting ready for Christmas Day that looms perilously close.

Today Grayson had a good day at the clinic. There were lots of treats, but the staff was careful to steer Grayson to the carrots instead of the cookies! Grayson spent his therapy time carrying a 25 pound load up and down the stairs up to the clinic (five flights) twice, sorting items, finding stuff in Theraputty™ and working on multi-syllable word intelligibility.

For the administration and the parents, we are concerned with a change in the insurance carriers, as Grayson current authorization for therapy runs out as the new carrier takes over on January 1. We are hoping not to have another gap in service like the one we had after discharge from Bakersfield. We have one more week to work it!

Pax!

Brant

22 December 2010

Day 402 – Grayson’s Journey


Dear family and friends

Another rainy day in "sunny" Southern California! As I go to bed, I "think" that the storm is over (isn't a week enough?) and we will be clear until Christmas when the next storm is expected. A record-setting winter already!

Today we participated in our monthly patient teleconference with the staff at the Centre for Neuro Skills. As always, it was a good conference with lots of data, questions and conversation. I would characterize the near term goals for Grayson now as improvements to quality of life. "Independence" is not really an expectation any longer.

I apologize that I did not take a picture of Grayson today, but he received compliments all day long on how handsome he was. He really did look sharp today!

We were excited tonight when we asked him if he wanted to watch a movie. Regina asked him if he wanted to watch a Christmas movie or something else. He said, Star Wars. We had to honor the request, so we enjoyed watching The Empire Strikes Back this evening!

Pax!

Brant

21 December 2010

Day 401 – Grayson’s Journey


Dear family and friends

Yet another soggy Southern California day – this is starting to sound like Seattle!

Regina and I met with Grayson's new physiatrist today. Proof yet again how small the world is, he is friends with old family friends of ours.

Grayson observed another evening of holiday activity as Regina and her sister Rita made dough for Christmas pastry. We all look forward to trying these treats!

Pax!

Brant

20 December 2010

Day 400 – Grayson’s Journey

Dear family and friends

We are now at day 400 of our journey.

The wet weather continues – not something that we are accustomed to. Southern California received 25% of its normal rainfall between Thursday and Sunday, and the wet weather will continue for a few more days. The ground our home is starting to saturate and we are starting to get a bit nervous. There was a minor slide just down the street tonight replete with fire engines, police and city workers. So far our home has had no issues.

Tonight was a fun night at the Reed Haus. Austin and Xixi came by and the house was filled with Christmas preparation. Wrapping gifts on the dining room table, shortbread baking in the oven 20 conversations going on at once – it was wonderful! Grayson was a bit overwhelmed with all of the noise and excitement, but he did OK with it all.

The clock is ticking down on Advent. The wait is almost over and Christmas will be here this weekend!

Pax!

Brant

19 December 2010

Day 399 – Grayson’s Journey


Dear family and friends

Today was another rainy day in Southern California. Rainfall records have fallen across the Southland and this storm will leave on Monday only to be followed immediately by another. The only good news here is that there are also near record amounts of snow in the High Sierras – good for summer water and winter skiing!

I took Grayson for a haircut this afternoon. He had a very sweet and very pregnant stylist today. As she cut his hair she asked me what had happened to him. I explained a very short version of his condition. At one point Grayson gently put his head on her belly. While it would be odd if you or I were to do that, for Grayson and the stylist it was a very touching and innocent moment. She started to cry, and could barely contain herself for the rest of the haircut. She gave me a big hug as we left, telling me through her tears what a handsome man he is.

Grayson still touches lives, though in ways far different than he did when he was younger. We are vessels.

Pax!

Brant

18 December 2010

Day 398 – Grayson’s Journey


Dear family and friends

It's Saturday – a happy cozy sleep-in day. Rain has been falling for 2 days and is expected for another 4 – an unusual situation in Southern California!

Grayson slept in late today – as did I. As the holiday break approaches, our annual ski trip does also. This year it will be what we in the Reed Haus refer to as Mammoth VI – our 6th trip with various family members to the ski resort in the Eastern High Sierras. This year we are considering taking Grayson and having him participate in a disabled ski program offered by Disabled Sports Eastern Sierra. Today, at the recommendation of the folks at DSES, I put Grayson in his ski boots and had him walk around for about 20 minutes. He was surprisingly stable on level ground. While I am concerned about icy conditions, this was a promising sign. The jury is still out as to whether or not we will take him this year – it depends on our comfort level. Stay tuned!

Pax!

Brant

17 December 2010

Day 397 – Grayson’s Journey


Dear family and friends

There was s cookie decorating contest at the clinic today. Grayson was the champ decorating (instead of eating) the cookies. Self control? A good thing! After the contest (and a few cookies), Grayson worked off those extra calories by walking up and down the stairs carrying 15 pounds in a bucket. The clinic is on the fifth floor, and he went down to the ground floor and back up – twice!

Is next Friday really Christmas Eve? Isn't it wonderful? Last year we spent all of our time in the hospital. This year we are getting ready for a wonderful Christmas at home – a long time tradition that we missed last year.

Pax!

Brant

16 December 2010

Day 396 – Grayson’s Journey

Dear family and friends

One of the things that I like about this time of the year is the atmosphere. Everything looks so festive – houses, Christmas trees, decorations. Even the houses smell better because of baking and mulled cider and the like. I am always disappointed when Advent and Christmas fade away.

One of the other things I enjoy is sitting around and enjoying special Christmas movies. Last week we started Fred Claus. We finished it tonight to the delight of Grayson and Regina.

One final week of Advent and waiting. Promise abounds!

Pax!

Brant

15 December 2010

Day 395 – Grayson’s Journey

Dear family and friends

There are times when I think that this is a blog not JUST about Grayson, but how the Reed family is coping with the journey. Each life touches so many other lives that it is impossible to determine how intertwined we are as a people. I remember when I was at an electronics store with Grayson a few weeks ago and the salesman recognized Grayson from before his incident. Their paths had crossed through friendships in the past, and I saw genuine concern in his eyes for a very changed young man. This is goodness! The more we all believe that our fates are intertwined, the more that reason and understanding will guide our actions.

As we madly prepare for our special Christmas with our families, let us remember to take a few minutes and give thanks for the people in our lives that make us feel like celebrating!

Pax!

Brant

14 December 2010

Day 394 – Grayson’s Journey


Dear family and friends

Tonight was not unlike many other nights. Grayson arrived home from the clinic. We did some chores together, played some games and waited for Regina to arrive with a) Lauren and b) groceries. We had a great dinner experiment (chicken with kalamata olives, marinated artichokes and tomatoes) made up as we went along. (It was a success!)

After watching an old Christmas movie (Jack Frost), I gave Grayson his meds – in applesauce as always. After we finished, he stood up. I asked him where he was going. He said, "To hug you." He put his arms around me and said, "I love you Dad."

I was touched to tears.

Then I completely lost all control. Waves of emotion rolled over me like an ocean as I relived the grief of the loss of my son's capacity to live independently, to read voraciously, to speak so eloquently, to be so informed, all while being so caring. I was consumed for a long time before letting go. Then we were back to normal – taking care of our loving and wonderful 25 year-old man-child.

We helped him brush his teeth and get ready for bed before tucking him in for the night.

Pax!

Brant

13 December 2010

Day 393 – Grayson’s Journey

Dear family and friends

Tonight we put the ornaments on the tree! Austin and Xixi came by and we added all of our favorite ornaments. Every year we add at least one new ornament to our collection. As we get older, we find that our tree gets more crowded. It's a wonderful journal of our life and we are quick to bore people with stories of the history of each ornament.

Grayson participated tonight due in part to his dear friend Xixi keeping him in the game. He hung ornaments along with the rest of us. He was excited and enjoyed himself this evening. He is like a little child excited about Christmas and all of the promise that it brings.

Advent is a time of waiting, after all.

Pax!

Brant

12 December 2010

Day 392 – Grayson’s Journey


Dear family and friends

Today was a wonderful church day. Gaudete Sunday, the third Sunday in Advent, is a day to rejoice, and we did so at church!

Regina, Lauren and I each had different reasons to arrive at church an hour before the 11:00 AM service. In addition to the regular Sunday happenings, Regina was the AV tech this week, Lauren was playing handbells and I was rehearsing quartet music for the concert this evening. After the service we had lunch and Lauren returned to church for more rehearsal. I arrived at 4:00 for my turn, and Regina and Grayson arrived at 5:00 for the concert. All of the choirs (3 children choirs and the adult choir) as well as the handbell choirs (2 children choirs, the high school group, and the adult choir), our organist, a vocal quartet and some soloists made up the ensemble. (I was one of the soloists and a member of the vocal quartet.)

It was a lovely concert!

Grayson probably spent more time in a church pew today than he was comfortable with, but he was a champ. Keeping in mind that he is not unlike a five year-old, 4+ hours in a pew is a long time! He did a great job today, and he followed much of the program tonight.

We returned home to find another surprise – Austin over for a visit! Xixi was tutoring someone in math locally, so she dropped Austin off for a visit before meeting her pupil. She joined the rest of us for dinner – what a treat!

So today was a day for us all to rejoice together – Gaudete!

Pax!

Brant

11 December 2010

Day 391 – Grayson’s Journey


Dear family and friends

Today we decorated for Christmas! After last year's holiday season spent in the hospital, it was such fun to put the house on its Holiday best!

Austin came by and joined Lauren, Regina and I to bring the mound of boxes of up to the main floor for unpacking and deployment. After the boxes were up, Austin and I put the lights on the tree – 615 lights to be precise! Mom hung the garland then Austin put the angel on top. We are now ready to hang the ornaments, but that will be a job for another day – likely Monday because Lauren and I are performing in the Christmas Concert at church tomorrow evening. 'Tis the season to be busy!

Grayson followed us around and watched as we put delicate things out. He was also a bit withdrawn today. I suspect that was because of the change to his environment. Change to the familiar is not easy for Grayson any longer. Adjustment takes time – even for the beautiful and familiar decorations that we have always put around the house.

After dinner, Grayson became a bit more comfortable because we watched the Christmas move Scrooge for the second time this season. A delightful film with wonderful music, it is a family favorite.

What a wonderful day! All of the kids home to decorate for Christmas – I don't think that I could ever get a better Christmas present!

Pax!

Brant

10 December 2010

Day 390 – Grayson’s Journey


Dear family and friends

Tonight was a guy night. Regina and Lauren went shopping and Grayson and I were left to our own devices. After doing some chores around the house, we went out for sushi – Grayson's choice! The two of us had a nice time at the sushi bar and having our fill of our favorite rolls.

We returned home and watched half of Fred Claus, and Grayson laughed like crazy! I'm looking forward to watching the other half so we can find out how the story ends! We were on the couch watching the movie when Regina arrived home with Lauren.

While Grayson's speech appears to be getting worse over time, other parts are getting better. Tonight while doing a household task, I asked Grayson to dispose of the trash. He picked up the pieces and took them to the trash can in the kitchen with no assistance or cues. I would not have done that in mid-September when he came home.

Step by step!

Pax!

Brant

09 December 2010

Day 389 – Grayson’s Journey


Dear family and friends

I arrived home this evening from a business trip to Arizona. Grayson greeted me with a big hug as I came in the door. (Regina did also!)

Since I left on Monday, it seems as if a little something may have awakened in Grayson's brain. He initiated a multi-step task and took some independent action. I was shocked (and pleased!) He also was more focused on doing some tasks, even if they were the mundane things like putting on pajamas. It is way too early to draw any conclusions, but there are some indications that a new "pathway" may have opened up and the results are promising!

Not a bad homecoming surprise!

Pax!

Brant

08 December 2010

Day 388 – Grayson’s Journey


Dear family and friends,

This week Grayson walked five flights of stairs carrying 11 pounds of weight in a bucket (the other hand on the hand rail) and then walked five flights with 20 pounds of weight. He walked on flat ground with 20 – 30 pounds and then walked backwards carrying 20 pounds. He pushed a cart loaded with weights, walked 100 steps on a NuStep machine, played Wii Fit games and helped decorate the office Christmas tree.

The occupational therapist worked with Grayson on coin identification and safety (what-if scenarios). She also focused on personal hygiene routines, shoe tying, fine motor skills and identifying multiple sensory stimuli with Grayson's eyes closed.

Another therapist used memory tasks, auditory comprehension, naming categories (e.g. words that begin with the letter "p"), three-step direction following, and word fluency exercises.

How fortunate we are to have access to such varied therapies and creative therapists. Those of you who have been through a rehab and recuperation program know exactly what I mean. In the meantime we are trying to learn as much as we can so that we can recreate this on our own when insurance no longer covers the therapies.

I pray that day is later rather than sooner.

Grace and peace,

Regina

07 December 2010

Day 387 – Grayson’s Journey


Dear family and friends

As we have shared several times, Grayson, on a regular basis, will not be able to act out the accurate steps of simple tasks. He needs cues to either get unstuck or remind him of the next step. Then suddenly, without supervision, he will completely follow through and complete several steps without any cueing or supervision. I take this as an exciting and encouraging sign of progress. While not dependable, it shows that pathways are slowly re-establishing with the consistent repetition that is provided in therapy and at home. Day by day and step by step.

This really is a journey. The last several days Grayson has shown many moments that reveal there is much more going on in his mind than he is able to express or act upon. It is a humbling and important reminder that we cannot take for granted that we understand completely what he is experiencing. We learn from him as he re-learns from us. We try to give him choices throughout the day rather than making all of the choices for him. Early on, you may recall, if we offered Grayson a choice of A or B, he would nearly always choose B. More an echo of the last option heard rather than a true expression of preference. Lately he has been communicating some of his preferences and sticking to them. Another encouraging sign of improvement.

A slow, sometimes unsteady, patient, and exciting journey.

Thanks be to God for the opportunity.

Grace and peace,

Regina

06 December 2010

Day 386 – Grayson’s Journey


Dear family and friends,


The therapy center Grayson attends Monday through Friday is located on the fifth floor of a medical building. Today, among the varied exercises the therapists ran him through all afternoon, was carrying a bucket loaded to 15 pounds. No big deal you might think but he had to carry it down all five flights of stairs AND back up again.

On the way home Grayson and I stopped by Costco, parked a long way from the entrance, loaded our cart with the usual king sized packages, hiked back to the car, unloaded the cart, drove home and carried everything up our flight of stairs. By the time we were finished Grayson was tired and hungry. After dinner and dishes, we put in a load of laundry and put clean sheets on his bed. I think we managed to tire him out this evening. He went right to sleep.

With Brant in Arizona I think I tired myself out, too. I miss my partner.

Give yourself a hug from me.

Peace,

Regina

05 December 2010

Day 385 – Grayson’s Journey


Dear family and friends

Grayson had another good day today. It has been several days in a row that we have noticed some slightly different and more alert behavior. It appears that there is a little something awakening. Because we are with him so much, we notice the very subtitle changes. We will continue to monitor and watch for changes.

This evening I made a large pot of beef stew that we can graze on for several days. While it was in the oven, we watched Santa Clause 2 for the second time this Advent. Grayson laughed and giggled his way through the movie. It is so fun to watch him laugh!

Pax!

Brant

04 December 2010

Day 384 – Grayson’s Journey


Dear family and friends

Grayson was a bit more with it all day today. He displayed more self awareness and awareness of others than usual. He was my helper at the grocery store this afternoon and he pushed the cart the entire time. When we arrived back home, he helped me carry the groceries up stairs and put them away.

We watched the big game (as far as LA was concerned!) this evening. The Trojans are once again the champs of Los Angeles after beating their cross-town rival Bruins today. As always it was a great game, and anything could have happened so that the outcome was in doubt until the final few minutes. It is cool that the Pac 10 has 2 BCS-bound teams this year, and that the Ducks will be playing for the crystal football. Go Pac 10! Actually, tonight was the last Pac 10 game ever – Go Pac 12!

Pax!

Brant

03 December 2010

Day 383 – Grayson’s Journey

Dear family and friends,


Today Grayson, Brant and I stood with two attorneys before a judge - one attorney representing Grayson and another representing the two of us. We listened as the judge agreed that Grayson was not able to make medical or financial decisions for himself. She approved the petition that Brant and I serve as Grayson's conservators and have authority to act on his behalf in any financial or legal capacity.

It was difficult to hear the words spoken that "based on the extent of neurological damage suffered during Grayson's arrest, his future prognosis affords little hope for recovery sufficient for Grayson to function independently". It was sobering to hear that he would need our approval to marry but curious that his attorney felt Grayson had sufficient capacity to vote in elections.

Nothing is really any different than it was yesterday but it was a harsh reality moment to have so many of our adult son's rights legally removed and relinquished to us. How could anyone understand what it truly means when you agree to become a parent? We certainly could never have imagined this chapter.

When the judge dismissed us, Grayson said, "thank you" to her. She smiled and said, "You are most welcome".

In my heart I am also grateful that we still have Grayson here with us, that we are still able to care for him, and that he seems happy. I am grateful that he still shows small improvements that steadily mark progress. Remember that grass also grows so slowly that its progress may seem imperceptible on a daily basis yet look at it at the end of two weeks. It's undeniable.

Grayson needs us and trusts us to care for him. We don't take that responsibility lightly. We accept the responsibility and ask God's help to guide us.

Grace and peace,

Regina

02 December 2010

Day 382 – Grayson’s Journey

Dear family and friends

This evening while I was at a meeting at church, Regina took Grayson out to dinner. While there, a few remarkable things happened. Midway through dinner Grayson took off his sweatshirt. Now that may not seem remarkable to you, but it was to Regina. He responded to a stimulus (too hot) and took independent action on it (took off his sweatshirt). We have become accustomed to him sitting until being told what to do.

Also while at dinner, Grayson looked perplexed or concerned. Regina asked him if anything was the matter or bothering him. He furrowed his brow. She asked what he was feeling. He took a long time to reply. Slowly he pointed his finger at himself. Regina said, "You?" Grayson then pointed at the sky and said, "Am happy!" (Regina cried.)

How can I add to that!

Pax!

Brant

01 December 2010

Day 381 – Grayson’s Journey

Dear family and friends

Grayson was a bit slow all day today. He stood up several times with no particular place to go at each meal and several other times today. He had moments of focus and clarity, but they were pretty rare while we were with him today.

This afternoon we had a patient conference with the staff at CNS. The impression that I took away is that Grayson continues to improve physically and although within "normal" range, he is still far from the robust youth he was a year ago. The major problem with Grayson's physical abilities is the lack of cognitive ability to control his actions. He remains a risk to himself and requires supervision at all times to maintain safety.

Grayson's inability to maintain focus and attention on a task continue to inhibit the administration of certain standard tests. The staff really has to work to keep Grayson engaged, and they are always finding new ways to motivate and encourage him beyond the usual 2½ minute attention barrier!

Grayson's speech has continued to be a challenge. This is one area where things seem to be getting worse rather than better. We continue to work at turning this around.

Fortunately, Grayson's pleasant demeanor remains a major positive as he works to recover.

Pax!

Brant

30 November 2010

Day 380 – Grayson’s Journey

Dear family and friends

Today Grayson started his day more alert than most. He moved faster and was more responsive than usual all day.

At the clinic he sorted four objects into categories for a while, but his ability to focus took over after a few minutes. Certain levels of physical activity help keep Grayson focused. There are small letters on the walls of the long hallway at the clinic. One of his tasks today was to walk along the walls and find specific letters. He was also tasked to find letters on a keyboard and in a magazine. These exercises are focused on building attention span. In PT today he walked on the treadmill for 10 minutes, climbed a ladder, and helped set up an activity by putting tape on the ground in specific places.

On the way home, Regina and Grayson sang songs and whistled (on pitch!) together. What a nice day!

Pax!

Brant

29 November 2010

Day 379 – Grayson’s Journey


Dear family and friends

After four days away from the clinic, Grayson was back today. He had a full afternoon of therapy. Today, among other things, he helped clean up the lunch area, worked on three syllable words for intelligibility, followed 3 step commands with 50% accuracy, identified coins, caught tennis balls, found objects in a popcorn bucket, walked the hallways forward and backwards while wearing a 30lb backpack and played "basketball".

When we arrived home from the clinic, he got out of the front of the car with his lunch box. I got out of the car, and he opened the back door of the car. I asked him what he was doing. He replied, "Planner." He had left his day planner in the back seat and he remembered it!

Tonight we once again dined on left-over turkey. (I sure am enjoying the easy meal prep!!) After dinner, Grayson wanted to watch Band of Brothers. This was one of his favorite shows before his incident. Tonight, he was clearly uncomfortable while watching some of the scenes. When asked if he wanted to watch more, he said no. I stopped the show and switched to a comedy until bedtime.

It was a good day!

Pax!

Brant

28 November 2010

Day 378 – Grayson’s Journey

Dear family and friends

Sunday morning – up and off to church for the first service of the new church year – the season of Advent!

After church we made a quick dash home to grab a quick sandwich and pick up Lauren then head up the movie theater where we met up with Austin and Xixi to see Harry Potter and the Deathly Hallows I. What fun!

We returned home after the movie and Austin and Xixi joined us for dinner. We still had enough leftovers to have roast turkey, dressing, green beans, gravy and turkey, noodle and vegetable soup. Toss in a little Wii time, and our evening was just as fun as our day!

Grayson had some spontaneous speaking today. Several times he rattled off multi-word sentences without prompting, and if you were listening close enough, you could make out what he was trying to tell you. Pretty good stuff, as we had not seen any improvement in this area recently!

The long weekend is over and what a wonderful one it was!

Pax!

Brant

27 November 2010

Day 377 – Grayson’s Journey

Dear family and friends

Today was another family day!

The first order of business after breakfast was to strain all of the solids out of the stock that had been cooking down for 18 hours. That accomplished, Grayson and I did some precision-strike Christmas shopping, then hit the grocery store for the veggies and noodles required to turn the stock into soup. We also picked out a surprise for Regina – a beautiful poinsettia plant. Advent starts tomorrow!

I turned about ⅔ of the turkey stock into soup and baked fresh bread for dinner. Day three of a house filled with wonderful aromas! I still have about 3 to 4 pounds of turkey left. Tonight I'll freeze some for use later!

At half time of the game-that-shall-not-be-mentioned, Grayson and I went into the exercise room to work out for a bit. He hit the treadmill for about 10 minutes (about all he is capable of handling), while I did some of my exercise routine. We returned at the beginning of the third quarter to our soup and fresh bread.

With the exception of the game, it was a good day!

Pax!

Brant

26 November 2010

Day 376 – Grayson’s Journey


Dear family and friends

Today was the day after Thanksgiving – a day where we get sleep in a bit and take a generally more relaxed pace. Our morning was marked by returning the kitchen to its shiny appearance after working it hard yesterday. As soon as that was accomplished, I started into the next tradition – making stock from the leftover turkey carcass. The stock cooked down all afternoon and evening, filling the house with another day of mouth-watering aromas.

Grayson enjoyed some television while we tidied the kitchen. After I cleaned up my mess from preparing the stock, Grayson and I went for a walk. When we returned we did some chores around the house, and ran a few errands.

Grayson and I finished the day watching Iron Man 2 while we had dinner of (you guessed it) leftover turkey, gravy, stuffing, sweet potatoes au gratin and green beans with water chestnuts and prosciutto. It was just as good today as yesterday!

Pax!

Brant

25 November 2010

Day 375 – Grayson’s Journey

Dear family and friends

The whole family, along with Xixi and Jason, was here to celebrate Thanksgiving today.

Regina and I were reminded that we really have a child living with us again. This afternoon, we noticed a fingerprint in one of the pumpkin pies and that point was brought home. Grayson is a sweet kid and that is great, but he is a kid again.

While today was spent busily tooling around in the kitchen making family favorites and new twists on traditional favorites, I was struck by how different things are from last Thanksgiving (which we celebrated in the lounge of a hospital), and how different again we were from Thanksgiving 2008 when we last prepared a normal holiday meal. Going back is not an option, and I never want to go back to where we were last Thanksgiving. We have much to be thankful for this year, and I am grateful for the opportunity to spend another holiday with a loving family living in the warm embrace of God's love.

Pax!

Brant

24 November 2010

Day 374 – Grayson’s Journey

Dear family and friends,

While we baked pies, chopped vegetables, and prepared the Thanksgiving table tonight Brant, Grayson and I watched the 1970 Christmas classic movie Scrooge. This is a musical rendition of Charles Dickens' A Christmas Carol. It is one of our all-time top movies and our favorite among the many adaptations of the classic tale.

Brant and I are both confessed emotional saps but each of us was particularly affected while watching this movie tonight and easily shared a box of Kleenex. Perhaps it is because no matter what character we saw, we could identify with their weakness or long to be more like them.

There is miserly Scrooge who feels bitter and guilty because he let so many precious moments slip by in the busy-ness of life ("You"). The business owner and family man who has the gift of making Christmas Eve in his warehouse the happiest place on earth not only by sharing generously of his money but with laughter and dancing ("December the 25th"). The family who greets the Christmas holiday with gratitude for the simple elements of their meager holiday feast and the gift of each other ("On This Beautiful Christmas Morning"). The nephew who never stops inviting his miserly uncle to his Christmas gathering in spite of the grouchy rebuffs each year. The townspeople who are overwhelmed by the complete forgiveness of their debts ("Thank You Very Much"). We couldn't help but be overwhelmed by the precocious little boy who sings like an angel and faces the prospect of illness and death with sweet innocence. And, of course, by the redemption of Ebenezer Scrooge himself who vows to put his selfish life behind him and live whatever days he has left with love in his heart, kindness on his lips, and generosity from his hands ("I am not the man I was").

We have so much to be thankful for this year. For family and friends who have held us up throughout this challenging year. For our three children who each bring their own gifts and joy to our family. And for our Savior and Lord whose love and grace never fails.

May your Thanksgiving Day tomorrow be marked by recognition of your own blessings. We love you all.

Grace and peace,

Regina

23 November 2010

Day 373 – Grayson’s Journey


Dear family and friends

Today was a good day for Grayson, both in terms of fun and good work!

Grayson was picked up a little early because there was a Thanksgiving Feast at the clinic. The staff put on the feast and all of the patients participated. The meal provided the opportunity for some "real life" therapy also! Grayson participated after the meal by moving and putting tables away and packaging the leftovers. There is therapy in everything we do!

Other things he accomplished at the clinic today:
  • Successfully answered orientation questions (What is your address, phone, etc.)
  • Performed auditory comprehension of 36 to 50 words
  • Carried a backpack of 10 lbs down 5 flights of stairs then walked across Ventura Boulevard (with supervision) to Office Depot. (What he did there is a mystery!)
  • Enduring one of the sensory testing machines (he doesn't like these very much!)
  • Successfully cleaned one of the luncheon pots 
He had activity, exercise, good food, friends, and accomplishment. What more could any of us want!

Pax!

Brant

22 November 2010

Day 372 – Grayson’s Journey


Dear family and friends

After a typical slow start this morning, Grayson was alert all day, and particularly alert this evening. At dinner Regina and I put together our Thanksgiving menu and shopping list. After dinner, the three of us went to the grocery for a two hour shopping trip. Grayson and I went one way, and Regina went the other. Grayson pushed my cart all over the (recently remodeled) store as we struggled to find our items in locations that didn't exist two months ago! This was almost like a real-world therapy session. Regina and I each walked out with a full basket. It reminds me of having two teenage boys in the house again!

When we arrived back at home, Grayson was very helpful in carrying groceries up the stairs to the kitchen. Since it was after 10:00 by this time, Regina had Grayson go through his evening routine. During that routine, he was able to successfully accomplish several multi-step tasks – not something that we are generally accustomed to!

It was a good day for Grayson.

Pax!

Brant

21 November 2010

Day 371 – Grayson’s Journey

Dear family and friends

Today was mostly a family day. Regina, Grayson and I went to the 11:00 service as usual today and Lauren was in the bell choir. They played a delightful arrangement of Crown Him with Many Crowns and we were pleased to be able to hear it. Last spring we were generally in Bakersfield when she played!

Austin and Xixi joined Lauren, Regina Grayson and I for lunch – a relaxed and unhurried meal together. I had to run back to church this afternoon to sing at the installation service of our new associate pastor. There were lots of good things to celebrate – a wonderful new associate, a great quartet to sing with and a festive occasion!

When I returned home, we started the season of Christmas movies. Tonight's selections were Elf and Santa Claus 2. Both of these delightful movies are right up Grayson's alley. He laughed, giggled and wiggled all night long. What fun!

Pax!

Brant

20 November 2010

Day 370 – Grayson’s Journey

Dear family and friends

It was a stay-indoors rainy day today. Regina and I hung some window treatments and Grayson spent time reading and a little time doing some chores. Later in the day we watched the disappointing performance of the Trojans in Corvallis. My parents, and a few cousins, are likely happy, but I need a feel good movie tonight!

Pax!

Brant

19 November 2010

Day 369 – Grayson’s Journey

Dear family and friends

Lauren, Austin and Xixi stayed with Grayson this evening as Regina and I went out to celebrate our 27th anniversary. What a blessing to have adult children that offer us the gift of freedom for an evening!

And what a blessing to have such a wonderful spouse to go out and celebrate with!

Pax!

Brant

18 November 2010

Day 368 – Grayson’s Journey

Dear family and friends,

Here is a tiny sampling of the kind of activities Grayson is walked through regularly to encourage the development of skills of daily living. Repetition, repetition, repetition is the key with as little cueing as possible. (The amount of cueing is a wildly moving target.) Remember these are all hard for Grayson to focus on and complete.

Re-learn how to tie shoes

Practice putting clothing on/off (proper sequencing is harder than you might imagine – one leg in, second leg in, pull up all the way around, adjust waist band, button, zip – reverse)

Make bed

Set table

Pour cereal, milk, juice

Prepare simple means, including stove top and microwave use

Load/unload dishwasher

Way finding around various venues

Hand washing, shower, and restroom sequencing

Shave or brush teeth for longer than five seconds

Simple typing and navigating on computer

Wash, dry, sort, fold, and put away laundry

Clean bathroom sink daily

Sweep kitchen floor

Sort mail by recipient name

Way finding and make selections at grocery store

Practice evacuation from home and clinic

Tap in time with metronome

Pop plastic package bubbles

Practice focusing on a task with and without distractions (very hard for Grayson)

Dig pennies and beads out of Playdough-type putty

Open jars, yogurt containers, turn on/off shower faucets

Bean bag toss from different angles into bucket

Bend down and pick up anything tossed at trash or laundry bucket which missed

Re-learn how to write/print letters and numbers (nearly impossible so far)

Did you ever wonder what your own day would look like if you broke it up and defined every activity every few minutes? We take for granted how much we have learned since our birth and how we build upon each experience. It becomes so obvious when memory of what was just experienced is NOT retained. Sure makes it hard to learn or re-learn. Be thankful for your mother's earliest lessons in your life.

Grace and peace,

Regina

17 November 2010

Day 367 – Grayson’s Journey

Dear family and friends,

I thought you might find it interesting to hear some of the things we and the therapists have Grayson do to improve his skills. Remember his attention/focus only lasts a few minutes so there is a lot of variety.

Today I'll start with a sample of things he has done in the last week or so targeting his physical improvement. This includes stamina, balance, coordination, as well as strength.

Walk carrying 10 pound dumbbells

Walk around the neighborhood for an hour

200 -300 steps on a NuStep machine

Treadmill from five to 20 minutes

Hop forward and sideways

Quad leg raises

Punch ball

Jump on a mini trampoline

Bouncing and passing a basketball, beach ball

Squats with 11 pound medicine ball

Kick a soccer ball

Balloon badminton

Sit-ups with medicine ball (six and 10 pounds)

Pushing a shopping cart with 200 pounds of weight in it

Breathing exercises

Carry trash and recycle down two flights of stairs

Carry grocery bags up two flights of stairs

Load and unload washer/dryer

Several games of Wii Fit – Ski Slalom, Ski Jump, Sword Play, and Penguin style fishing

More tomorrow. Grace and peace,

Regina

16 November 2010

Day 366 – Grayson’s Journey

Dear family and friends,

One year ago, this very hour, Grayson experienced a series of events which led to a cardiac arrest. He had little or no oxygen for nearly 12 minutes resulting in significant residual brain injury.

The story could have ended there.

During the turbulent hours that followed Brant and I continued to give thanks to God for the 24 years we were able to share life with Grayson and kept our hearts open, yet steeled, to what lay ahead. In the midst of the pain and uncertainty, I prayed that, if Grayson were to survive, he would be able to have a quality of life that at least allowed him to be happy. I released all other expectations.

How precisely those prayers were answered. Grayson may forget how to brush his teeth, how to tie his shoes, how to clean himself, stand up or initiate a sentence but you should hear him laugh. It takes over his whole body complete with squirming and snickering. It reminds me of his belly laughs when he was an infant.

Life will be different for Grayson and his family from now on. He will live with significant challenges the rest of his days. The financial and practical aspects of maximizing his neurological and physical progress are always present. But, as God promised, there will be joy.

To all of you, our family and friends, we express our deepest appreciation for your continued spiritual and practical support. We thank God for your presence in our life and share with you (even over cyberspace) the continued joy that is Grayson.

God's grace and peace to each of you,
Regina

15 November 2010

Day 365 – Grayson’s Journey

Dear family and friends,

This morning Grayson woke up a little more "with it". He cooperated well and was able to execute his morning routine with a little less cueing. It still takes a long time to go through the morning routine compared to what it would take you or me. The temptation can be just to push him through the tasks simply to expedite the completion. Since the goal is not to complete the tasks but to have him move closer to being able to complete them more independently, we take our time. It is a good (and constant) exercise in patience.

Grayson walked the sidewalks of Encino for 40 minutes today. This was really pretty good for his usual endurance level. He seemed more energetic and responsive this afternoon.

On our way home, we stopped to fill the van with gasoline and I spied the recently renovated local IHOP. It brought back so many memories of taking the three kids there when they were smaller for a special dinner. Tonight I took my man/child.

I let him peruse the menu and then asked him what he wanted to drink. He ordered chocolate milk with whipped cream and drank it down with a straw like a happy little boy. He tried to slow down at my urging but was enjoying it so much that he barely stopped until there was that wonderful, musical slurping sound.

We should all slow down and enjoy these simple, sweet delights that we discovered as children.

I ordered breakfast – with buttermilk pancakes.

Grace and peace,

Regina

14 November 2010

Day 364 – Grayson’s Journey


Dear family and friends

Grayson had another slow start today. On his "slow start" days he just has difficulty putting things together – walking down the stairs, using the restroom, putting on a bathrobe – all tasks that he can easily do later in the day that he cannot complete in the morning.

Grayson and I went for a walk today. We go about 30 minutes – half up the hill, half down. Usually I have great difficulty getting him to move with any speed. Today he did pretty well going uphill, and he was right with me going down. That is a first!

We played Wii after we returned from our walk. We tried almost every game in there, and it was tough to keep him engaged. Finally Regina stumbled across something that he would work for more than just a few minutes.

Pax!

Brant

13 November 2010

Day 363 – Grayson’s Journey


Dear family and friends

Saturday! Sleep-in day – especially after last night!

We let Grayson sleep until almost 10:00. I don't think he has slept that late since the day of his incident!

We had a leisurely breakfast then got ready to go out on this beautiful Southern California day – crystal clear and warm (mid 70s). We went to the farmers market for fruits and veggies and then went out to lunch. We ran a few more errands prior to the game and then we settled in to watch our Trojans take on the Wildcats. The spirits were with us today and the Trojans took the victory. By the time the game was over, Grayson was ready for bed!

It was a lower energy day, but a nice one with Grayson on a post-card spectacular day!

Pax!

Brant

12 November 2010

Day 362 – Grayson’s Journey


Dear family and friends

Grayson was a little more "with it" when he got up today than he has been all this week. Austin and Xixi picked him up from home and drove him to the clinic. There they worked with him and are learning more each time they observe. When they arrived back home after the clinic this evening, we all started working on dinner prep.

Tonight several of Grayson's friends from USC's Bovard Auditorium came by for dinner and movie night. We had Tri-tip, acorn squash, green beans and fresh bread for our group of nine. After dinner Austin and Xixi showed the movie, How to Train your Dragon – a thoroughly delightful movie. After the movie the group scattered all over the house – some played Backgammon, some played Wii and some started assembling a jigsaw puzzle. Grayson stayed up until 11:30 before asking to go to bed. What a totally fun night!!

It is a wonderful gift to us that these young adults came over to give joy to Grayson. It warms our hearts to see that Grayson is not forgotten by his friends.

Pax!

Brant

11 November 2010

Day 361 – Grayson’s Journey


Dear family and friends

Grayson woke up extremely hard again today. Fortunately for us, in spite of his difficulty waking up and making connections, he is sweet and loving. He gives lots of hugs and snuggles!

When he arrived home from the clinic this evening he was a bit on edge. He seemed a little stressed by unspecified things and that stayed with him the entire night. Interestingly enough, the "edge" actually allowed him to perform better in some of his activities of daily living (ADLs). He was able to remember and focus on some tasks that generally evade him. Something was different and not quite right, yet some things were easier – how about that!

Another pretty good day!

Pax!

Brant

10 November 2010

Day 360 – Grayson’s Journey


Dear family and friends

Grayson was very low energy this morning, and it was difficult to get him ready for the clinic. Regina worked her magic and he was ready for pick up when the transportation arrived!

When I arrived home from Seal Beach this evening, after picking Lauren up from hand bell rehearsal at church, Grayson was there to greet us (with some prompting from Regina, I expect!) Dinner was ready to serve, and Grayson had done his part by setting the table under the watchful supervision of Regina. What a delightful greeting after a long day!

Grayson was alert and active this evening, way more so than this morning. After dinner (which was late for Grayson due to my late arrival) Regina got him ready for bed. We said goodnight and let him read his Garfield comic book. (Not to go down a bunny trail, but the book was given to him by my mother prior to her passing away in 1994). We could hear him chuckling and laughing before we got downstairs to do the dinner dishes. It warms my heart and makes me smile to hear him so happy that he laughs out loud!

Pax!

Brant

09 November 2010

Day 359 – Grayson’s Journey

Dear family and friends

Grayson had an early morning this morning – 2 hours earlier than normal because of a cardiologist appointment and associated tests this morning. He did well considering!

Grayson's aunt Rita took him from the UCLA Medical Center to his therapy at CNS – with the treat of lunch on the way. After therapy, Xixi picked Grayson up, brought him home and stayed with him until we returned. Thanks to these two angels who took care of Grayson's needs, while we were able to attend to some urgent family business.

Grayson was particularly alert and active this evening. For those of you who have seen Grayson recently, the phrase "alert and active" is a bit subtle. Perhaps I should say that he was more alert and active than he is normally!

Pax!

Brant

08 November 2010

Day 358 – Grayson’s Journey


Dear family and friends

Grayson had a good day today!

Grayson woke up a bit more alert than normal, and went through his morning routine more easily than usual. He had a neurologist appointment this morning so the day was different than his routine!

This must be "medical week" because Grayson has a series of cardio tests at UCLA tomorrow. We are now actively trying to establish or reestablish a medical team that can follow and participate in Grayson's care as he continues his journey since his return from Bakersfield.

All in all, Grayson did quite well today. This evening he played with the Wii with far less supervision than normal.

In other news Austin, Grayson's longest roommate to date (they shared a room from late 1989 until Grayson moved to USC in 2004), turned 23 today. Austin celebrated his natal day with a late rugby practice. We are exceedingly proud of Austin as we are of all of our kids. Happy Birthday, Austin!

Pax!

Brant

07 November 2010

Day 357 – Grayson’s Journey

Dear family and friends

Perhaps it was the additional hour of sleep (daylight savings ending), but Grayson was unusually alert this morning. He got up and was actually a bit helpful in his morning routine where he normally requires lots of assistance. He actually responded to me in a three word sentence before breakfast!

We went to church this morning and Grayson sang two hymns and spoke the Lord's Prayer out loud – unusual because he has been quite non-verbal in church for the past few months. After church we caught up with Austin and Xixi for lunch. What a delight having them so close by so that we might enjoy their company! After lunch we came home and had a quiet afternoon.

This evening Grayson helped me prepare dinner. We cut rosemary off of the hill and peeled garlic – the two primary ingredients for the rub I put on my pork roast. (Peeling garlic is particularly good for Grayson's fine motor skills.) We popped the roast in the oven and then went for a 30 minute walk to get Grayson's heart pumping. Needless to say, the house smelled wonderful when we returned!

It was a good day for Grayson!

Pax!

Brant

06 November 2010

Day 356 – Grayson’s Journey


Dear family and friends

Grayson was cooperative and easygoing all day as we enjoyed our Saturday. One of the things we did today was our grocery shopping for the week. Grayson selected the yogurt flavors, soups and fruit that he wanted, and he helped to unload the grocery cart on to the checkers conveyer belt without being asked to help.
When we returned home, he helped unload the groceries from the shopping bags, sorted them into categories on the kitchen counter, and then helped put them all away.

He played several games of Wii with Regina, and then watched Honey, I blew up the kids and he laughed and laughed. After that movie ended Regina got to turn the USC/Arizona State game on.

Regina was given 50 yard line tickets to the USC game today, and we gave them to Austin as an early birthday present. (Not THAT early – his birthday is Monday!) Austin, Xixi and I thoroughly enjoyed the tickets (great seats), and the game (an exciting cliff-hanger). It was a squeaker, but the Trojans won.

Pax!

Brant

05 November 2010

Day 355 – Grayson’s Journey


Dear family and friends

Grayson had a good day today. He also had company! Austin and Xixi went to the clinic with Grayson to better understand the activities and therapies that he experiences so that they might be more effective helping with his care. What a gift!

After the three of them returned from the clinic, Austin and Xixi gave me a debriefing on the activities today before heading home. Regina and I took Grayson with us and joined Rita and Richard for dinner at our favorite sushi joint. It was a delightful evening and Grayson thoroughly enjoyed one of his favorite foods.

When we returned home, Grayson and I played Wii until it was time for him to go to bed. Yes it was a good day!

Pax!

Brant

04 November 2010

Day 354 – Grayson’s Journey


Dear family and friends

Today when Grayson woke up, he was stuck. He just couldn't seem to do anything. He couldn't stand up from the bed, he couldn't put on his pants or put on a shirt or socks or shoes. He put his head on the table at breakfast and didn't eat breakfast for the longest time. It was a miracle that Regina was able to get him ready for transportation to the clinic.

This afternoon when he arrived home from the clinic he was alert and active. Regina gave him a multi-step activity to accomplish – go upstairs, put your socks in the laundry bucket, put on your sandals and come back downstairs. He did it!! He was engaged and active all night. Wow what a difference from this morning!

Oh, and this is so typical of brain injury.

Pax!

Brant

03 November 2010

Day 353 – Grayson’s Journey


Dear family and friends

Grayson had a good day today. When he arrived home from the clinic he had a snack of cut fruit, then we did some chores. After the chores we started to get ready for the quarterly Court of Honor of our Troop 125. Grayson had been invited as a special guest.

The Court of Honor was fun. Many of the adults and leaders knew Grayson from his years in the troop as a youth and as an adult, as he was still involved up until his incident last year. Grayson was a bit on edge due to the level of energy in the room, but he did well. He thoroughly enjoyed the dinner and the desert, and he was quite patient until the end. We managed to hang on and stay through the retirement of the colors.

When we arrived back home, Grayson was pretty well done. He took his meds, played Wii for a few minutes then it was time to get ready for bed. After the routine of getting ready for bed, he lay down with a book and never got up. He was snuggled in his covers and going to sleep when Regina checked in on him.

It was a full day and a good day!

Pax!

Brant

02 November 2010

Day 352 – Grayson’s Journey


Dear family and friends

Grayson had a tough morning – he couldn't seem to get his brain awake for the longest time. When he is like this it is so frustrating because he just can't seem to do what is needed – sitting up in bed, standing up, going to the rest room, walking downstairs for breakfast. It took him close to an hour before he was ready for breakfast this morning. It was a tough start.

Once he finally was firing on all of his (few remaining) cylinders, he was fine. He was off to the clinic by 11:30 and arrived there with lunch in hand a few minutes past 12:00. Here is what the therapists wrote in Grayson's planner today:

Speach Therapy – Sorting four categories; three syllable words for intelligibility; answering orientation questions; following three step verbal directions.

Physical Therapy – Work on tying shoelaces; play basketball; kicked soccer ball.

Occupational therapy – Functional problem solving by putting shapes in slots; Sensory integration.

When Grayson arrived home, he was much more engaged and active than he was this morning. We played some Wii, did some chores and made dinner.

It was a pretty good day!

Pax!

Brant

01 November 2010

Day 351 – Grayson’s Journey


Dear family and friends

Monday – back to the weekly routine!

Morning routines – including breakfast, making lunch, showering and personal hygiene, morning meds, blood pressure, dressing, making the bed – all accomplished before the departure for the clinic. When Grayson returned home, he was in good spirits and doing OK. We finished the day with reading, chores, dinner and a little Wii before the bedtime routines.

Nothing spectacular today – just the new routine at the Reed Haus!

Pax!

Brant

31 October 2010

Day 350 – Grayson’s Journey


Dear family and friends

Today was an early morning for me as I was part of a wonderful vocal quartet for both services this Reformation Sunday. We were joined by a pair of trumpets and our organist to lead the congregation in song this morning. The regular choir is starting rehearsals this Thursday, as a new interim choir director has just been hired.

After church we had lunch with Austin and Xixi. After lunch, Xixi went to tutor a Flintridge Sacred Heart student in physics, and Austin and I ran by Sports Chalet to check out the rapidly growing collection of ski and snowboard stuff. When we returned home, Regina and Grayson had decorated the house for Halloween, and Grayson was in a costume! Austin helped us with a little heavy lifting (putting the back seat back into the van) and Grayson suddenly walked over and picked up a case of water bottles that Regina had just unloaded from the van and carried them upstairs. I thanked Grayson, and then said, "A Scout is…" and he responded, "Helpful!" Grayson is still a very helpful and courteous young man, and is he continues to live the 12 points of the Scout Law as he is able.

Because of the 80° heat over the past week, the pumpkins that Austin and Xixi had carved last weekend turned to mush. While Austin waited for Xixi to finish tutoring, he prepared another pumpkin so that they could carve it later this evening at home.

After Austin and Xixi left, Grayson and I played with the Wii for a while. It is difficult for Grayson to focus very long on the games, but he loves to watch people play almost as much as TV.

Tonight we had wonderful dinner at Rita (Regina's sister) and Richard's. While there, it was fun to see the neighborhood kids come to the door for candy. In the 23 years we've been in our home we have never seen a Trick-or-Treat visitor. There are simply too many stairs at all of the houses in this neighborhood.

A long but very fun day today!

Pax!

Brant

30 October 2010

Day 349 – Grayson’s Journey


Dear family and friends

Saturday! After overnight showers, today was a beautiful day! Grayson and I ran errands for several hours today. Among the errands, Grayson got a haircut, we shopped briefly at the La Canada Farmers Market, picked up meds at the pharmacy and went to the grocery store to pick up food for the game.

Austin and Xixi came by to watch the game with us, and Lauren and her boyfriend had dinner with us in during the third quarter. Perhaps the dinner distraction is why the Trojans started to break down around then! They held their own until well into the 3rd quarter when the USC scoring engine just stopped. The Ducks did a great job tonight, and I'm glad to see a Pac-10 team ranked #1. (Perhaps someone will finally realize that there are football teams outside the SEC!) I'm sorry that with the new conference alignment that we will only play the Ducks, Beavers, Cougars and Huskies every other year from now on.

Grayson enjoys it when people are over. He watches and listens more intently and laughs more frequently when people are around. Tonight was no exception. While he sat in front of the TV, he was mostly sideways in his seat so he could watch all of us in the kitchen!

The game was a great opportunity for family to gather. Too bad about the score, but Grayson had a great time anyway!

Pax!

Brant

29 October 2010

Day 348 – Grayson’s Journey

Dear family and friends

As soon as Grayson returned from the clinic today, we put on long pants and headed down to USC. Tonight Austin was playing in a rugby match and we wanted to see it. This one was a special match that Austin could not lose. It was the current team vs. the alumni – and Austin qualified to play on either side! He played most of the game as the captain of the current team, as the current captain was sidelined due to injury. However in the final quarter, there was an injury to the alumni squad, and they were a bit short on bench strength. As a result, Austin removed his jersey, put on an alumni jersey, and went out there and played for the alumni! All in all it was great fun, as most of the alumni were recent and knew Austin well. The bottom line – the alumni crushed the current team. All of the best players from the past few years were there and they were unstoppable!

Rugby, if you have never seen it, is part soccer, part American Football, part keep away, and just plain crazy! Just so you sound informed the next time someone asks you about Rugby, a contest that we might call a "game", is called a match. The playing field is called a "pitch". The shoes that the players wear are celled "boots". What we might call a "touchdown" (and the players must down the ball in the end zone to score) is called a "try".

If you know Grayson, sports have never been his thing. He did well to sit still through the first half then the two of us took a short walk over to the bookstore to poke around a bit while Regina and Xixi continued to cheer on the teams. Since this is Homecoming Weekend, the store had more merchandise than I have ever seen in it! We purchased a trinket then headed back to watch the end of the match. I hope that our football team will score like our alumni tomorrow. Unfortunately hope is not a very good strategy. Given that the Ducks brought their weather along with them, it is a bad omen!

Tonight was a fun evening for all – Fight On!

Pax!

Brant

28 October 2010

Day 347 – Grayson’s Journey


Dear family and friends

Routine – it is one of those things that people like more or less of in their lives. Some feel confined by it, others find it comforting. Some amount of routine is essential and I for one am grateful that most people put daily showering in their routine! For those like Grayson who are recovering from brain injury, routine is one of the few things that can substitute for a lack of short term memory. Cueing Grayson through a routine helps him successfully complete a task. As the routine becomes more ingrained, fewer cues are needed.

If it was time for you to go to bed, you would just do it, including changing into bedclothes, washing your face, brushing your teeth and anything else that you might need. That is your routine. For Grayson, that is way too complicated. You need to break the task (going to bed) down into bite sized chunks then cue him through the chunks. Changing into bedclothes really consists of removing your clothing, putting them away or into the laundry basket, then selecting bedclothes, then putting them on. That is still too complicated for Grayson. Removing your clothing consists of: sit down, untie your shoes, remove your shoes, remove your socks, unsnap your pants, unzip your pants, remove your pants then remove your shirt. That is the level of routine that we work with – activities of daily living broken down into steps that he can be cued to remember. Around here, the following type of phrase is often heard: "Grayson what is the first thing that you need to do to take off your pants?" Grayson will likely respond with, "Unzip?"

Using routine to work around short term memory issues – another technique for dealing with brain injury!

Pax!

Brant

27 October 2010

Day 346 – Grayson’s Journey

Dear family and friends

Today was a pretty typical day. Grayson was as slow as molasses and difficult to engage when he got up in the morning, and he returned home this afternoon engaged and active. Just not a morning person – never was!

We were informed that the conservatorship hearing will be postponed for some period of time to allow the court to ask additional questions. As a result, Friday will be a opportunity to set up some new physician relationships. Always plenty to do!

Pax!

Brant

26 October 2010

Day 345 - Grayson’s Journey


Dear family and friends

Today was the CNS Halloween Pot Luck! Grayson did the shopping yesterday for his meal contribution and today was the big event. The patients arrived in costume, including Grayson who dressed as Indiana Jones! Here he is dressed up earlier this year as he was today.

He worked hard today – including PT time on a trampoline and time on the stair stepper. He slept all the way home from the clinic but he woke upon arriving home, and was alert for the evening. He was with us this evening as we went out to dinner and the grocery store, and he was my shopping cart buddy as we gathered our treasures at the market!

By the time we returned home and unloaded the groceries, he was ready for bed. Another good day!

Pax!

Brant

25 October 2010

Day 344 – Grayson’s Journey

Dear family and friends

Today, in addition to his regular therapies, Grayson went to the grocery store to purchase items that he can bring to the Halloween Pot Luck at the clinic tomorrow. He was assigned the salad, so he and his occupational therapist went to the store to acquire the salad fixings!

Today Grayson, and the two of us, met with his court appointed attorney. Friday is the court hearing to determine if Regina and I should be appointed as Grayson's conservators. The court has appointed Grayson counsel so that he may be fairly represented. I have been quite impressed with this process and the caring of the individuals involved. I am hoping that things will go smoothly on Friday.

In general, Grayson was slow this morning, but was quite active and alert this evening. A good day!

Pax!

Brant

24 October 2010

Day 343 – Grayson’s Journey


Dear family and friends

Today was another quiet day for Grayson, but not because there wasn't any activity! After church this morning, we met up with Austin and Xixi (pronounced She-she since so many have asked!) for lunch at a little local bistro. After a delightful lunch, Austin and Xixi headed out to acquire pumpkins for All Souls Day, or something like that. They brought them over for an afternoon of carving. We made pumpkin bread to get in the mood and used the fresh seeds to make a delightful snack. Here are the results!

By the time we were ready for dinner we ordered pizza and watched the Iron Man 2 movie – what a fun night!

As I said, Grayson was not very engaged today, but he enjoyed the company, the activity and the laughter. Who wouldn't?

Pax!

Brant

23 October 2010

Day 342 – Grayson’s Journey

Dear family and friends

Today was a great day! Today we celebrated the award of the Eagle Scout rank to a Scout from one of our church families. There was a wonderful Court of Honor in our sanctuary and a reception in our church hall. It was a joy to attend! The Reed family contingent of Regina, Grayson and Brant were all there in uniform to celebrate the accomplishments of this fine young man. Grayson even had the opportunity to stand during the recognition of all Eagle Scouts.

While Grayson was a bit off of his game today, it did not deter our celebration. Congratulations Owen – it was your day!

Pax!

Brant

22 October 2010

Day 341 – Grayson’s Journey


Dear family and friends

Grayson had a different day today. The patients at CNS went on a field trip to a corn field maze. I'm not aware of the particular details but he had a good time. When later asked what he did today, he said, "Corn". Regina asked him to put his answer in a sentence, and he said, "I saw corn." Progress!

Because of the impact of the presidential motorcade on the freeways around our house, Regina and Grayson decided to take a detour on the way home and went out to our favorite sushi place. They had a delightful dinner together and enjoyed some of Grayson's favorite food.

I arrived home from 10 days on the road this evening and found Grayson waiting up to greet me. He gave me a big hug before heading off to bed. According to Regina, he had another "with it" day – a little more verbal and signs of initiative.

Another good day!

Pax!

Brant

21 October 2010

Day 340 – Grayson’s Journey

Dear family and friends

While yesterday was a low-key and disengaged day for Grayson, today he was quite "with it". Regina picked him up from the clinic and they decided to do dinner instead of fighting the traffic home. In the middle of dinner Grayson stood up and Regina asked him where he was going, and he said, "the rest room." There were two key things there – he initiated going to the rest room (generally if we don't remind him often he doesn't go) and he communicated his intention. Initiation and communication – two key things!

This evening after arriving home from after dinner, he was heading up the stairs carrying his lunchbox, a sweatshirt and a drink. Regina offered to carry the drink and Grayson responded, "Now I can hold the railing." Regina was floored, as this was six words in a row, they were understandable and they were not just parroted back.

Today was a very good day!

Pax!

Brant

20 October 2010

Day 339 – Grayson’s Journey

Dear family and friends

Today was a low key day for Grayson. He had a difficult time engaging and was pretty much just along for the ride today. It is hard to describe why other than to say, "brain injury".

The roller coaster continues!

Pax!

Brant

19 October 2010

Day 338 – Grayson’s Journey

Dear family and friends

Grayson woke up this morning and was bright, alert and more conversational than usual. He also had a good day at the clinic in therapy.

Regina has put him to bed later than his "normal" bed time to see if that would be a better fit for him. For the past two days he has stayed down when put to bed. That is good news indeed. Perhaps we are on to something!

Pax!

Brant

18 October 2010

Day 337 – Grayson’s Journey

Dear family and friends

Yesterday was an up day, today was a subdued day.

Grayson is adjusting to his new therapy routine, but it is not a simple process. His ability to focus for more than just a few minutes is a constant issue when it comes to therapy. Today he was able to continue on the treadmill for 15 minutes which is an extended period of time for Grayson. We will continue to watch and observe to see that we are getting value for the cost of this care. Since this is day 2 of day therapy, we will give it some time.

Pax!

Brant

17 October 2010

Day 336 – Grayson’s Journey

Dear family and friends

Today was a full day. Grayson and Regina were at church by 9:45 to attend the special congregational meeting to vote on the call of a new associate pastor. I am happy to report that she was called, and we now have two pastors for the first time since 2005!

After church, Grayson and Regina went to lunch then grocery shopping. Tonight Regina, Grayson, Austin, Xixi, Lauren and her boyfriend went out to dinner. They were just sitting down to dinner as I returned to my hotel room after finishing a leisurely dinner with business associates in Orlando! Ah, the curvature of the Earth!

Grayson was particularly aware today – the exact opposite of yesterday. He was more active, more participative and more vocal. In fact, he initiated conversation a few times – that is extraordinary! Several folks commented on it, so it wasn't just us. Good news – I wish it was more consistent.

On a personal note, today marks my 33rd anniversary of joining Hughes Aircraft, now part of the Boeing Company. It is hard to believe that so much time has passed, and that I am now housed in Seal Beach, a former Rockwell facility. Change is the only constant in nature!

Pax!

Brant

16 October 2010

Day 335 – Grayson’s Journey

Dear family and friends

One of the problems with writing this blog when I'm three time zones away is that my bedtime sometimes interferes with the reporting of the news! Here is some activity that didn't make it into yesterdays posting:

Xixi and Austin came over on Friday after the inauguration of USC's new president. Xixi spent some time reading with Grayson. She would read a paragraph then have Grayson read one in an attempt to keep him engaged. By all counts she was successful. It's good to have a chemical engineer as your reading buddy!

Lauren, Regina, Xixi, Austin and Grayson then went out to see a movie. Grayson sat between Regina and Austin and Grayson was so happy to be sitting next to his brother. He was well behaved all through the movie.

Today was a low key day for Grayson. He was low energy all day and it was difficult to motivate him to do anything – so typical of brain injury! He and Regina watched the game, and the Trojans won, squeaking by Cal 48-14. How 'bout those Ducks, Doug – a bye week and it looks like they will move into #1! Now we just need to find them some decent uniforms…

Pax!

Brant

15 October 2010

Day 334 – Grayson’s Journey


Dear family and friends

Today Grayson started day therapy at CNS in Encino. Grayson did well with the new therapists. Because his attention span is less than 10 minutes on any particular task, it sure makes for sloooow progress. All of the therapists remarked that it is a good thing he has such a loving personality.

Regina met with a physical therapist, an occupational therapist, and a speech therapist. She also spent several hours with a case manager discussing medical and financial resources, cost of in-home assistance, nutritional supplements to aid in brain healing, legal resources, training available for in-home aides and how to make sure that the needs of the care givers are met.

It was a full, but good, day!

Pax!

Brant

14 October 2010

Day 333 – Grayson’s Journey

Dear family and friends

Today was good and a busy day. Regina and Grayson played Wii, took a long walk, did chores, washed laundry, brought in the trash cans – lots of things that are good and necessary in our lives. In addition, Regina spent several hours working while Grayson was occupied with reading and other activity.

Tomorrow Grayson starts day therapy. I hope this will be as beneficial as the therapy in Bakersfield – we should know more tomorrow!

Pax!

Brant

13 October 2010

Day 332 – Grayson’s Journey

Dear family and friends

Woo hoo – the insurance authorization for day therapy has finally come through! Thanks to all who helped break the log jam.

Grayson will start therapy again on Friday – great news!

Pax!

Brant

12 October 2010

Day 331 – Grayson’s Journey


Dear family and friends

I have said to Regina, "Since Grayson has returned home, this blog sounds more like OUR journey than Grayson's!" It certainly is all interconnected now that he is back in our home.

Grayson had a good day. He was a bit more aware than his usual, and he was very cooperative and helpful today. This evening when I was unloading the dishwasher, without being asked Grayson went to the flatware basket and started putting the pieces away. There is a pattern in the flatware drawer, salad forks, dinner forks, soup spoons, etc. and he is able to follow that pattern and successfully accomplish a task. I was thrilled, and this is huge – no cueing or asking – he just did it!

It is amazing how wonderful such little things can be, isn't it?

Pax!

Brant

11 October 2010

Day 330 – Grayson’s Journey


Dear family and friends

Grayson was different today. He awoke a bit easier, was more alert all day, and explored his world a bit more than usual. I've learned not to get my hopes up as tomorrow he may be back to "normal", but nonetheless it was fun to see today.

Here is a "baseline normal" for Grayson. If you push Grayson to work hard mentally, he tires very easily – perhaps 2 to 3 minutes. The first sign of tiring is Grayson scratching his head. If the stimulus continues (he is encouraged to do more) then he starts to put his head on the table or anything that will support it. If you are not tuned in and continue to try, Grayson will stand up and leave the room.

Grayson had the patience to do a 50 piece jigsaw puzzle today, with only minor encouragement from Regina. He also played Wii way more than usual, though getting him to finish a game of anything is difficult. All in all, today was a great day!

Pax!

Brant

10 October 2010

Day 329 – Grayson’s Journey


Dear family and friends

Today I was invited to attend the Court of Honor for the Verdugo Hills Council National Scout Jamboree Troop. For those not as immersed in Scouting as we are, a Court of Honor is an event to recognize and a celebrate accomplishments. Our council, like every other council in the Boy Scouts of America, organizes one or more troops to represent them at the National Scout Jamboree. Because of their size, some councils send as many as 20 troops – ours sends one. Each troop that a council sends is made up of 36 boys and 4 adults. There were close to 1000 troops at this year's Centennial National Scout Jamboree. Jamborees are typically held every four years – the last one was in 2005 and the next one will be held in 2013. The 2010 Jamboree was planned to be "off schedule" in order to be held during the centennial year of Scouting in America.

In the case of our National Scout Jamboree troop, this was their final event. The boy leadership was recognized for their good works, the adults that worked hard to make the trip a success were thanked and acknowledged, and the Scoutmaster was praised and thanked in the most special way – heartfelt thanks from teenage boys. It just doesn't get any better than that!

Sitting in the audience brought back a flood of memories for me, and memories that I know Grayson still has. For fun, here is a picture of our 2001 National Scout Jamboree Troop in front of their Gateway (Grayson is standing next to me in the back row – Austin is to the far left in the front row), a picture of Grayson and three fellow Scouts after laying a wreath at the Tomb of the Unknowns in 2001, and a picture of Austin and three fellow Eagle Scouts doing the same thing at the 2005 Jamboree (Austin is in the back on the right). Moments forever burned in our memories that even a catastrophic brain injury like Grayson's can't erase.

This evening Austin and Xixi came by for dinner on their way home from the (disappointing) USC game and weekender in the San Francisco Bay Area. We had a wonderful visit replete with good food, Wii and conversation. Grayson was particularly excited and animated this evening. What a delight that they choose to spend time with us when they can.

Pax!

Brant

09 October 2010

Day 328 – Grayson’s Journey


Dear family and friends

Saturday! Grayson and I slept in a little bit. It was a great day with a more relaxed pace.

After a leisurely breakfast we went to the local farmers market to stock up on fruits and vegetables for the week. Grayson was in a bit of a low-energy fog today. He came along for the adventure but he wasn't exactly "with" us. We brought food home and had lunch and then played a little Wii. He was not too interested today. He would start to play and then give up, more inclined and happy to watch play rather than do it himself.

After Wii, Grayson and I went for a half-hour walk before the game. Not much change from the morning – along for the walk, but not very engaged.

Saturday is also college football day! I always look forward to the unpredictable nature of college football, and the anticipation of a great game for the only one of my alma maters that still plays football. (My high school gave it up a few years back, and Loyola University gave it up in the 60s, several years before I attended and they merged with Marymount College.) As I stated yesterday I thought that divine intervention would be required, but USC mostly held their own against the Trees. Unfortunately, the last team with the ball won, and Stanford won as time expired. It was a disappointing loss but the outcome was a whole lot better than last year. And for all of my cousins that attended the Oregon schools, great job Beavers! The Ducks had a bye week, sort of. Heck, even we beat the Cougars!

Pax!

Brant

08 October 2010

Day 327 – Grayson’s Journey


Dear family and friends

Three weeks ago Regina and I had our last night alone together. Things have certainly changed since then!
Tonight we went out to dinner at a little local restaurant that we have frequented for many years, Café Sole. No wine tonight, but we did have a lovely dinner. Regina had Sea Bass Picatta, I had Linguini with Jumbo Scallops and Pine Nuts and Grayson had Pappardelle with Sausage and Artichokes. A most satisfying meal by all counts and Grayson was well behaved throughout. The only incident to speak of was when the meal was over and I was waiting for the bill. Grayson decided to stand up suddenly. As he sometimes does, he got off balance and almost fell into the table behind us. Fortunately he regained his balance as I caught his hand and an embarrassing incident was avoided. On our way out I apologized and explained that Grayson had suffered a brain injury and they were most sympathetic.

Regina observed a positive incident of note today. After putting toothpaste on his brush, Grayson started brushing his teeth with his right hand. While brushing, he took the toothpaste tube in his left hand and closed the flip lid, put the tube in the drawer and closed it. Reflex perhaps? It was a measure of control and simultaneous action we were thrilled to see. Grayson has difficulty maintaining focus on one item at a time, so this was a good thing.

Tomorrow is Saturday, and in the evening we get to watch the battle of the only private schools in the Pac 10 or 12 – the University of Southern California and the Leland Stanford Junior University. The Trojans may need divine intervention to beat the Trees this year.

Pax!

Brant

07 October 2010

Day 326 – Grayson’s Journey

Dear family and friends

Today we are nearing the end of three weeks home. We were told that the approval process for the day therapy would take about five days. After three weeks, we are a bit discouraged. The approval will probably not last beyond year end, and we have lost three weeks of therapy already. Additionally, Regina is stealing minutes away to try and keep current with her job, but that is not easy. Grayson can be left to his own devices with a book or TV for a while, but that doesn't challenge him to relearn life skills. The trick is to keep him working with you as much as possible so he is engaged. The challenge is that to allow him to help turns a 5 minute job into a 20 minute job. Deadlines are no longer relevant.

Regina and Grayson ran some errands this afternoon. They returned from their chores and Grayson and I made dinner – well we assembled one of my favorite dutch oven meals and put it in the oven to cook for 90 minutes. That gave all of us some time to play with the new Wii for an hour this evening!

Grayson wants to play, but he has difficulty with attention span and fine motor control. We are working to try and keep it simple and fun to keep him in the game and stretching his capabilities.

Pax!

Brant

06 October 2010

Day 325 – Grayson’s Journey


Dear family and friends

Today started out slow for Grayson and ended well. Grayson was his usual morning zombie but he awoke later to be a relatively engaged dude!

The cool weather is sure a pain – I am so going to miss summer. Having to help him remove a lot of clothes and size 13 shoes to go to the bathroom in a hurry is really tough. Shorts and flip-flops will be sorely missed!

Wednesday is trash night and Grayson gathered all of the trash and recycle with me and took it out to the street. We also did several therapeutic home program (THP) modules and set the table for dinner.

After dinner and meds, we tried our new Wii for the very first time! Grayson tried his hand at flying an airplane and bowling. Perhaps this was a good thing because Grayson went to bed and only got up twice – a new two week record!

Pax!

Brant

05 October 2010

Day 324 – Grayson’s Journey

Dear family and friends

Today Grayson was awakened with his usual morning music and was guided downstairs to breakfast in his usual fog. Grayson requires a lot of supervision, especially on the stairs, in the morning. Man that kid wakes up hard!

Regina got him up and out in about three hours. They spent most of the day running errands, but running errands with Regina isn't your typical errand-running. She parks as far away from the store as possible. She races Grayson to the store. If it is uphill that's even better! All the time they are out she is talking to him and challenging him to move faster, identify what he sees, to use his words and to use full sentences. Errands are the new therapeutic home program – Reed style!

Pax!

Brant

04 October 2010

Day 323 – Grayson’s Journey

Dear family and friends

Today was a busy one for Grayson. Regina worked with him doing many things but the most fun was music therapy! Grayson was enjoying playing various percussion instruments along with recorded music – great practice with rhythm, expression and controlled movement.

While Regina was at her office, Grayson helped me prepare dinner – a beef stew. We chopped veggies, peeled garlic, blanched and peeled tomatoes, snapped green beans and generally had a good time making a mess of the kitchen, before cleaning it all up again! On an uncharacteristically cool (high of 68°) and extremely rare rainy day in LA (normal rainy season is November to April), a pot of hot beef stew out of the oven was heavenly!

After dinner Grayson and I had a quick walk up the street and back before dessert and meds. He sat down to watch an episode of House, then was off to bed.

Pax!

Brant

03 October 2010

Day 322 – Grayson’s Journey


Dear family and friends

Today was World Wide Communion Sunday at Salem. The church rocked with fun music from around the globe this morning. I was honored to be part of the vocal quartet that, along with our organist, percussionist and conductor, presented the music. Unfortunately that meant that I was up and out of the house before Grayson was up, leaving Regina with the duty. Regina was her usual amazing self and she and Grayson arrived at church well before the second service.

We were again touched by all of the love we felt at church today. Since we have not been at the early service since Grayson has been home, it was the first time I have seen many of these folks for a while.

Regina went to her office this afternoon and Grayson and I ran some errands and did some chores around the house before heading to the grocery store. The store had a small town feel today, because as we were in the produce department we kept running into friends that we hadn't seen in ages. One of those that we ran into was the person that took Grayson on his very first ski trip back in 1998! It was great to catch up and great for them to see Grayson.

We returned home to unload the groceries and put on a quick dinner. Grayson was quite animated and active this evening after a very low energy day. Perhaps it was because Austin and Xixi were coming for a visit? Their visit was charming, and as always I was grateful for their company. Grayson was quite focused on the conversation and was laughing out loud at some of the antics we described. He had a ball tonight! Regina arrived home after Grayson was in bed but just in time to say "Hi" and "Bye" to Austin and Xixi.

Grayson has been a little better staying in bed tonight, but he is not going to sleep. It is 11:45 now and he is still awake. So far he has only tried to exit the room twice since I put him down at 8:30. I hope something is awakening in him, but this late-night activity is a challenge!

Pax!

Brant

02 October 2010

Day 321 – Grayson’s Journey

Dear family and friends

Saturday – almost always a good day!

We got up a bit slowly this morning. After breakfast and the morning routine, Grayson and I went to the La Canada Farmers Market to acquire fresh goodies for the weekend – guacamole fixings for the game, fruits, vegetables and salad fixings for the week, and a quiche for lunch.

Grayson had visitors this afternoon – Erica and Siobhan, schoolmates from Flintridge Prep. I am so proud of how these "kids" have turned into such responsible and caring adults!

After Erica and Siobhan departed, Grayson and I went for a walk. As we were walking up the canyon, a car pulled over and Pastor Jon from Redeemer Lutheran in Bakersfield hopped out! He was heading home from the UCLA game and spotted us – talk about a small world! Redeemer Lutheran is the church that welcomed us so warmly during our stay in Bakersfield. An even less likely coincidence, Pastor Jon is the brother of our own Pastor Kurt at Salem Lutheran! It was great to see Pastor Jon again and we had a nice, albeit short, chat as he was heading back to Bakersfield.

The rest of the evening was spent watching an exciting football game. Unfortunately for me and my family, Washington wound up on top at the final second. I guess I'm going to have to wear a purple shirt again for my Seattle friends!

Pax!

Brant